I was diagnosed with lupus 10 years ago and fibromyalgia 3 years ago. My reaction to the fibromyalgia diagnosis was incredulous. I am a master’s educated, licensed social worker and my exact words to my rheumatologist were “Isn’t that a made up disease?”
I have no words. Well, that’s not entirely true, is it?
Here are my thoughts, do with them what you will. I will shout into the void and maybe some of these will land in the ears of those who need to hear them, in a universe of infinite possibilities, it is certainly okay to hold out some hope.
It’s okay to want to be healthy. That’s how you are supposed to feel.
Life is the last good fight I’ll ever know. It’s beautiful and brutal, heartbreaking and tender.
The more time I spent listening and remembering, the more I realized that Prince’s music was the touchstone for some of the most pivotal times in my adolescence and young adulthood.
I am more than a body with an illness. An exploration of recovery and self-perception.
Each day should come with a label, like the pieces of extraneous paper the pharmacy hands out with medication or those horrible televised commercials from Big Pharma.
Isn’t it funny how monitoring symptoms and practicing medicine seems to assist in alleviating a patient’s concerns?
I thought I knew what to expect when we got on the phone with the credit counselor, after all, I’ve been on the counseling side of this conversation plenty of times. I was wrong. There were some unexpected lessons waiting for me on the other side of this experience that I had not anticipated.